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About

FCF, a public 501c3 nonprofit organization based in Greenwich, CT, was founded in 2009 by 27-year-old Tucker Davis, who lost his life to Fibrolamellar on Rare Disease Day in 2010, after an 18-month fight. FCF has funded nearly $10 million in research across more than 24 major institutions in the U.S. and internationally. 100% of all donations go towards research. All FCF’s overhead and administrative costs are paid by the Charles A. and Marna Davis Foundation and Stone Point Capital. For more information, visit www.fibrofoundation.org

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Press Contact

Name
Greg Walsh
Phone
203-292-6280
Email
Contact Us
Website
https://www.fibrofoundation.org

Press Releases

Two Different Rare Diseases Before Age 20: Chansen Savakinus’ Rare Disease Day Message

More Released on February 25, 2022

Making Noise to Find Cures. Fibrolamellar Cancer Foundation Raises Awareness for #RareCancerDay 9/30/21

More Released on September 28, 2021

SMASHFEST Fundraiser Skates Into Stamford

More Released on August 8, 2021

Rare Disease Awareness Day Critical As Patients Struggle During COVID Times

More Released on February 26, 2021

Rare Cancer Isn’t Uncommon: Courtney Homer’s Story

More Released on September 30, 2020

Fibrolamellar Becomes Lead Example for Rare Cancer Awareness Day #RareCancerDay

More Released on September 25, 2020

Chan Zuckerberg Initiative Awards Fibrolamellar Cancer Foundation First Ever Rare As One Network Grant

More Released on February 6, 2020

October 1st Declared As Rare Cancer Day

More Released on September 29, 2019

Fibrolamellar Global Summit Determines Research Funding As #GivingTuesday Top Priority

More Released on November 22, 2017

Fibrolamellar Cancer Foundation Helps Lead Liver Cancer Awareness Month

More Released on October 11, 2017